Yellow Pages for Loveland, Colorado

My pissy day

Yesterday sucked. It has been colder than cold which may seem expected to many of you who don't really understand the true Colorado weather in the northern Colorado foothills. Seriously, it is sunny 300+ days a year here and often very mild throughout the winter. We get some snow (though not nearly as much as people envision or expect) but it usually melts away inn a day or two. This last snowstorm we had has left the white stuff as frozen as the day it arrived. On one hand we haven't had to deal with the slushy, muddy, sloppy mess but nonetheless to keep the white stuff frozen has cost the temperatures to be freakin freezing cold!

I have been hunkered down in my home for a few days with just the token "driving the kids" to and fro. I'm getting cabin fever and am ready for it to warm up. Of course I could bundle up the Beckster and go somewhere but Becca's crappy sleeping habits have made that tough. Becca is going through some kind of crazy sleep pattern where she goes to sleep at night then wakes up for often hours at a time. Then she is of course all tuckered out in the morning when I'm supposed to be getting her dressed and ready for preschool. Now most of you who are parents know the rule, "never wake a sleeping baby". Well that rule goes for 3 year old Autistic girls too. If you do, you'll pay in spades. So instead, we work around her schedule.

Her new doctor discovered some interesting results from one of her many labs that the doctors at The Children's Hospital ordered. Now I should say that although they ordered these tests I never actually heard anything back from them except, "her results are normal". However, when I brought Becca's "book" of medical records to her new doctor, he poured over them and actually learned quite a lot from them. One thing he noticed immediately is that Becca's body is storing melatonin and for some reason isn't able to access it. He was baffled why her Doctor at Children's wouldn't have spoken to us about this. There were a few other discoveries to be found in her records as well. It was enlightening and dismaying at the same time. Dismaying that the thousands of dollars worth of tests that were ordered by a doctor were pretty much useless to us until we gave them to our new doctor. Enlightening because although her new doctor didn't have immediate answers, he saw her results as clues and made notes to himself so he could do the proper research as to what this all meant.

Now that I'm talking about Becca's doctor, I guess I should go all out. I attended this Autism Support Group with one of Becca's paras from her school. It was all very divine how it all worked out. Lori (her para) gave me a flyer about the meeting the morning of and asked if I wanted to go with her. I jumped on board and we went to hear a lecture by a BioMedical doctor, Dr. Roger Billica. He is a DAN (Defeat Autism Now) doctor and was awe inspiring with his information and his great success stories with Autistic patients. He didn't claim that there was a cure for Autism but rather cures that differed for each individual person. What works for one person, doesn't for another etc.... I was so impressed and couldn't wait for the next morning to come around to make an appointment for Becca. He was pretty booked so her appointment wasn't for months away. We knew that the first protocol he would recommend would be a GFCF diet (gluten-free, casein-free) so we prepared ourselves by learning about it before the appointment.

Dr. Billica recommends getting very specific genetic testing done on his patients so that he can really and truly see what is going on inside their bodies. We were prepared so we jumped on board and took all the home testing kits home. There are 4 different tests we are doing. One requires that we collect Becca's urine for 24 hours and then send it overnight to the lab. Another requires the first morning urine. One was a blood test and involved us pricking her finger and squeezing the blood out onto a card. The last test was testing for heavy metals so we had to cut some of her hair and send it in. We've successfully done the blood and hair but the urine tests have been a complete failure. We were familiar with the urine collection bags that they use on kids who aren't potty trained. The Children's Hospital did one of those too. The lab tech placed one on her and put the diaper back on. We waited and waited hours for her to pee only for the pee to completely bypass the bag and go right into the diaper. Fortunately they only needed a tiny bit so there was just enough drops in the bag to use.

When we left Dr. Billica's office armed with 20 collection bags we thought it wouldn't be too tough. Wrong! The bags do not stay put and the diaper just absorbs the liquid gold known as pee. We bought vinyl pants to put on Becca over the bag and thought surely we could just use a medicine syringe to suck up the pee that made it out of the bag. Instead most of the pee bypassed the bag, the pants and ran down her leg. It has been so frustrating and very messy. We finally told Dr. Billica's office that we just couldn't do it. So it seems she'll need to go to a lab and have a panel of blood work done instead. So we need to wait until we can afford it and will have to head back to Children's since they are the only lab that has a clue how to do labs on a child. You may be wondering about insurance. Well, they are done paying for Becca's testing. They also don't cover Becca's Doctor visits with Dr. Billica. Their excuse is that it is redundant. Yes we are appealing. We are also in the middle of an appeal with the insurance over Becca's therapy as well.

Meanwhile Dr. Billica won't have the results of the blood and hair for awhile yet so we wait. When he gets them back he will do an individualized supplement and health plan for Becca. We are rubbing Gabba cream on her daily and are slowly transitioning to a GFCF diet. We met with his nutritionist and she suggested we transition slowly after the holidays (wise advice since this time of year is rough to get something like that going).

I totally got of track of what this posting was even going to be about. I was supposed to complaining. Well, I don't really have much to complain about. I really have a blessed life and feel pretty stupid for letting myself get in a funk. After all, I have some friends who are going through hell right now so what do I have to complain about? Their 3 daughters were in a very serious car accident 12 days ago. Their middle daughter is still in the ICU down in Children's Hospital with a BOLT, an AVD and PICC line. Her brain is so swollen that they haven't been able to take her off of sedation to have her wake up and do serious testing to find out the extent of her damage. She's only 10 years old and it has been extremely rough. Her oldest sister was also hurt very seriously but is doing much better. Her younger sister is better physically but was extremely traumatized by the accident (she was the only one conscious during the accident).


So I guess the fact that I am feeling a little down is pretty pathetic. I need to suck it up and be grateful for all my many blessings. I have a lot of them after all.

I heart my Kindle

Amazon.com has created the most genius way to read books, newspapers, blogs and even your own word documents. I remember when the Kindle first debuted over a year ago. I was curious if I'd ever be interested in something to replace a book. I mean I'm a pretty hardcore reader so I couldn't fathom not actually holding a book in hand. I heard some great things about the Kindle and my brother-in-law Ty was sure they were going to be all the rage. Now a year later I have one in my hot little hand and I LOVE IT!! It is like an iPod for books. There are so many cool things you can do on the Kindle. The screen is so easy to read and isn't like a laptop in the way that you have to tilt it just so. It looks just like a page on a book. It is so lightweight and is so incredibly user friendly. Books download to the Kindle in 60 seconds or less. I love it, love it, LOVE IT!! You were right Ty, it is fabulous.

If you are at all curious, go to amazon's website and take a look.
Watch the video at near the center of the page see a more complete tour of the Kindle.

Halloween 2008

The leaves are falling and the air is finally getting crisp. Autumn has finally arrived although we had a very warm Halloween this year. The wind wasn't blowing (JOY!) and it was mild enough that the kids didn't even need jackets for their trick or treating. Ah, bliss. Some years it has been ridiculously cold and horrific with blustering wind. This year was perfection.

We didn't make it to our church's "Trunk or Treat" this year because we were sick. This meant that on Halloween morning I had to scramble to the grocery store to buy candy last minute. Usually the boys get so much loot from church that we have more than enough to hand out on Halloween night. We always put our bowl on the porch with the scary witch ball and a sign asking people to only take one or two pieces. We can't man the door because both John and I like to go with the kids door to door. We have such good kids in our neighborhood and they never cease to amaze me when we come home and find that there is still candy left.

We went over to Grandma Hannon's house before we set out for the trick or treating adventure. She loves to load the kids up with treats and take pictures. The boys decided to hit a few houses in her neighborhood and stumbled onto the "greatest Halloween house ever" said both Jack and Harrison. Harrison got 7 full size candy bars from this one house as well as a container of PlayDough. Jack got 4 full size candy bars, 4 things of PlayDough and 3 other pieces of candy. We were so certain that they "helped" themselves but they assured us that the man had a tray and asked them what they liked then proceeded to hand them their loot. That house will forever go down in history.

We went over to Shauna's house so we could see the cute robot costumes that Ty had made for Oliver and Elliott. They were so cute and so detailed. They had gadgets, music, and all kinds of cool buttons and doodads. Ty did a fantastic job making them the cutest robots ever. Little baby Matilda was a kitty with a black tutu. She was too cute for words.

Our boys were so proud of their costumes especially since every male between the ages of 4 and 44 knew exactly who they were. They were Mario (Harrison) and Luigi (Jack) from the Nintendo Mario games. They got endless compliments and lots of great attention. They ate it up. We went into Safeway to buy them a trick or treat bucket and the employees went crazy for their costumes. Then the manager came up and gave them each a cute foil Halloween balloon. They strutted out of there with their heads held high.

Becca was the sweetest Little Red Riding Hood ever. Her costume fit her like a glove and she even wore her hood most of the time. I couldn't get her to carry her basket except for a quick picture I managed to take. She looked so precious. She lasted pretty well throughout the evening until the very end when John had to carry her home and put her in her stroller. She thought it was fabulous walking around at night and seeing all kinds of kids out and about. It was a good night!

Jack is a sweet "sensi".

For those of you who aren't "Scrubs" fans, a sensi is a sensitive fellow. My little guy Jack is one of those. He has the sweetest, most empathetic heart of anyone I know. Last night as we were beginning our annual ritual of watching Charlie Brown's "The Great Pumpkin", we were commenting on the fabulous old-school costumes Charles Schultz' characters wore which were mostly sheets with eye holes cut out. John remarked that that was exactly the costume he was wearing when some older kids stole his candy. I was remarking about poor sad little boy John when I noticed Jack who was cuddled on my lap covering his eyes and his quivering jaw. When he could hold it in no more he melted in distressed tears for his Daddy's candy loss as a little boy. Both John and I tried to comfort him and remind him that it had happened about 35 years ago. He could not be consoled. His little heart was broken. The only thing I could do to perk him up was to offer to take him to my room and watch The Great Pumpkin together cuddled together. Jack is a little cuddle bunny and adores snuggling with his family. I couldn't ask for a sweeter boy.

This incident reminded me of a similar one where John was talking about his Dad who died before I met John. John was saying how much he wished his Dad could meet his family. We looked over at Jack as he began making soft crying sounds. He sat there and mourned his Dad's Father's death. He was devastated imagining his own Daddy not having a Dad alive. He was so annihilated with sorrow for a man he had never met.

The Must-Read of the Year

I love sharing finds and ideas with my friends. It occured to me recently that I shouldn't be so selfish and that I need to share with "all" people as in: "It's important to all people". I adore movie and television quotes so I'll be using a lot of them. If you can figure them out on your own, then you and I are probably very simpatico.

Okay, on to the meat of my blog, stuff. I love stuff. I know it is completely dangerous to admit such a thing now. I might as well yell from the rooftops that I like smog, landfills, eating animals and child labor. By the way I do like one of those things. You can do your best to figure out that mystery. Here's a hint, my children are terrible workers. Anyway, I love the latest and greatest new thing. When I own something that is suddenly outdated by the launch of something better I suddenly despise the aforementioned "old" thing and obsess and pine away for the new thing. I rarely get my hands on the new thing until the price has dropped and it becomes available for the masses. But when I DO get it, I devour it. I eat it for breakfast, lunch and dinner. I become an expert and a total know-it-all. I am your go to girl!

My latest obsession is with children's clothes. I'm so tired of the same ole stuff. You go to every "chain" type of store and everything looks exactly like the last place you went with just a few minor changes. Argh!! I can't sew, I'm not a clothing designer so how do I find things that make my child look unique without spending celebrity prices? Hallelujah! I have finally found a couple of go-to places that I can rely on for better choices and some individuality. Enter the PolkaDotPatch. This is a children's boutique tucked away in some faraway land they call Vermont. It has the cutest, brightest, most fun clothing ever. I just bought my daughter this awesome sock monkey shirt that is to die for!! http://polkadotpatch.com